Please send me the information or items indicated below.
Highlight an item to select it and complete the contact information at the bottom of the page.. |
Information
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General information about Niemann-Pick disease
Overview of the disease, support resources, and research. |
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Foundation Membership Application
Membership includes the Newsletter, Family Conference Package, and Notification of Clinical Trials.
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Newsletter
The newsletter is sent to donors, friends, and members. Special family inserts are sent only to members. |
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Fund Raising Package
General guidelines and helpful hints.
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Family Conference Package
The conference is generally held in July. Registration packages are available in March. |
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Guide to Getting Media Coverage
Practical advice on obtaining news coverage for your event. |
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Notification of Clinical Trials
The Foundation notifies registered families and members of pending clinical trials. |
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Fund Raising, Awareness, and Education
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Videos
Emotional and informative, these videos can be used for fund raising or awareness campaigns. A donation is suggested to offset the cost of these items.
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Fund Raising
A small donation is suggested to offset the cost of these items.
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Public Awareness and Education
A small donation is suggested to offset the cost of these items.
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