National Niemann-Pick Disease Foundation, Inc.



The Disease
"What is Niemann-Pick Disease?"	Updated	01/08/2005
"What are the Signs and Symptoms of Niemann-Pick?"	Updated	01/08/2005
"How is Niemann-Pick Diagnosed?"		07/31/2004
"What Treatment is Available for Niemann-Pick?"		07/31/2004
"How is Niemann-Pick Transmitted?"		07/31/2004

Niemann-Pick Type A & B Website
Index Version Française

"How can I Help My Child?"		06/09/2003
"One Child's Struggle with NPC"		12/18/99
"A Parent Talks About NPC" (video 719 kb)		04/09/2004

"Pick's Disease"	New	04/24/2005

The Foundation
"What is the National Niemann-Pick Disease Foundation?"		01/24/2002
"What Services are Available to Families?"		04/25/2000
"What is planned for the Next Family Conference?"		01/02/2004

"Tommy Kenny: The Boy Who Inspired Our Rainbow Logo"		02/16/99
"Stacey Vorpahl: A Girl Who Inspired Others"	New	12/03/2004

"Membership Application"		02/16/99
"Contact the National Niemann-Pick Disease Foundation"		09/04/2004

"How can I Contribute to the NNPDF?"		08/29/2004
"How does the NNPDF Spend the Money You Donate?"	Updated	02/27/2005

The Research
"Research Summary"		07/08/2003
"What Research Grants have been Funded?"	Updated every 6 months
"What Fellowships have been Funded?"	Updated every 6 months
"What Clinical Research and Services have been Funded?"		02/23/2004
"How can I apply for a Research Grant?"		08/31/2004
"How can I apply for a Fellowship?"		08/31/2004

"What happened at the 1999 Symposium on NPC?"		01/19/2000
"What happened at the 2003 Symposium on NPC?"		06/29/2003
"What is happening with the OGT-918 Clinical Trial?"		07/03/2004
"What is Cholesterol Metabolism?"		08/08/2004

The People
"Photo Gallery"		09/11/2004
"Tributes"		06/28/2003
"In Memory"		09/04/2004

Support and Communication
"Newsline"	Newsline is regularly updated with current news
"Parent to Parent"		01/19/2003
"Email Support List (Listserv)"		04/02/2004
"The Niemann-Pick Newsletter"		10/12/2002
"Contact the National Niemann-Pick Disease Foundation"		04/09/2004
"Links to Related Organizations & Other Helpful Resources"		03/22/2004
"Trucks Used for Awareness Campaign"		03/07/2000

Foundation Stores
"Where Can I Find Adaptive Aids?"		10/15/2001
"Where Can I Find Helpful Books?"		01/02/2003
"Where Can I Find NNPDF Awareness Items?"		01/06/2002
"Where Can I Find Toys?"		05/23/2001


Other Niemann-Pick Support Groups
Canadian Chapter of NNPDF	Canada
Fundacion Niemann-Pick de Espana	Spain
Niemann-Pick Disease Group (UK)	United Kingdom
Niemann-Pick Selbsthilfegruppe	Germany
Vaincre les Maladies Lysosomales	France

The NNPDF Website was established August 29, 1997.

To give us updates or feedback on this Website,
email: Janet and Doug Pease, Webmasters.

This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. You should always consult with a physician to determine if the information presented applies to your case. Please take a moment to review our cautions about medical information provided on the Internet.

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