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National Niemann-Pick Disease Foundation, Inc.

Research, Advocacy, Support, Awareness

Is a child you know experiencing some of these symptoms? We, the families of the children affected by Niemann-Pick Disease thank you for joining us as we persevere in our quest to find a cure.

We, the families of the children affected by Niemann-Pick Disease thank you for joining us as we persevere in our quest to find a cure.

abdominal enlargement
enlarged spleen or liver
jaundice following birth
unusual shortness of breath
repeated lung infections
cherry red spot inside the eye
vertical eye movement difficulties
progressive loss of early motor skills
feeding and swallowing difficulties
learning problems
sudden loss of muscle tone
slurred speech
seizures
hypersensitivity to touch

These symptoms may be an indication of Niemann-Pick Disease.

Chances are you haven't heard all that much about Niemann-Pick Disease. It's a rare disease, but maybe not as rare as we think. You see, many times diagnosis is difficult.

By reviewing the information in this Website, you can become better informed about this disease and spread the word to others.

Help fund research when
you shop at Amazon.Com

Donate online at

Mail contributions to

PO Box 310
Ft. Atkinson, WI 53538

Quick Links
Request More Information
about Niemann-Pick Disease or the Foundation.
Diagnostic and Genetic Testing
An update on diagnotic and genetic testing for all forms of Niemann-Pick.
Boat Raffle and Bass Tournament
The Lee King Benefit Bass Tournament will be held June 9th in Eufala, AL. with many activities, including the Stratus 285 Pro XL bass boat raffle. Register or buy a raffle ticket online.
Race for Adam
The 2nd Annual Race for Adam will be held in Allentown, PA on May 20th. Register online.
NNPDF Family Conference
will be held August 16-19, 2007 in Milwaukee, WI. Use the link above for more information about hotel and flight reservations.
Type B Clinical Trial Starts
The enzyme replacement therapy clinical trial for Niemann-Pick Type B has finally begun. Use the link above for more information.
Combined Federal Campaign
If you are a Federal worker, please consider NNPDF for your CFC donation. Our CFC number for this year's campaign is 2692.
Persevere Bracelets
and other Awareness Items
News Line
Recent news about Niemann-Pick.
Curing Her Could
Also Cure Alzheimer's
Yet, ironically, she has the disease
everyone forgets.
Fall 2006 Newsletter


Click below to see the index for each topic
The Disease (menu)	The Foundation (menu)	The Research (menu)	The People (menu)
Getting Support (menu)	International (menu)	Helpful Products (menu)	Complete Index

Click below to view a specific page
News Line	Family Conference	Type B Site	Contact Us
Fellowship Application	Grant Application	Membership Application	Search the Site


Organizations providing continuing support to NNPDF
HFTP Gold Coast Chapter	Tomorrow's Hope	Genzyme Corp.	CellTech

This site is an educational service of the National Niemann-Pick Disease Foundation and is not meant to provide diagnostic or treatment advice. You should always consult with a physician to determine if the information presented applies to your case.
Please take a moment to review our cautions about medical information provided on the Internet.

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verify here.

The NNPDF Website was established August 29, 1997.
The site counter was reset on November 4, 1999.

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To give us updates or feedback on this Website,
email: Janet and Doug Pease, Webmasters.

Thanks to

for sponsoring this website.
Credits, Copyrights, and Privacy Notice

All pages at this site are © 1997-2005 National Niemann-Pick Disease Foundation, Inc.

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