How Can I Contribute to the NNPDF?

Here are 10 easy ways to contribute to the National Niemann-Pick Disease Foundation and help fund the medical research, family services, and educational services necessary to fight Niemann-Pick. *

For the Children . . .

More	(1) Mail a tax deductible contribution or donate online.
More	(2) Become a member - and renew your membership each January
More	(3) Hold a fund raising event in your area.
More	(4) Direct your United Way gift to the Foundation.
More	(5) Direct your Combined Federal Campaign gift to the Foundation.

More	(6) Ask your employer to make or match a donation.
More	(7) Honor an anniversary, birthday, or special friend.
More	(8) Send a "Friends and Family" letter.
More	(9) Establish a trust or bequest.
More	(10) Contribute goods or services .
"Does my small contribution really make a difference?" Research projects cost a lot of money. A pilot project can cost $25,000 or more. A large research project can cost $200,000. "I can't contribute that kind of money. My friends and family can't raise that kind of money. Does my donation really matter?" Every donation makes a difference - to researchers and to families. $ 1.00 means four families can receive the newsletter. $ 40.00 buys a month's worth of chemicals for a research project. $ 250.00 will pay to care for a research animal for a year. $1,000.00 will keep the website and email discussion list operating for a year. Without the newsletter and website, families are left alone to cope with the effects of Niemann-Pick. Without the chemicals and research animals, scientists are left with no way to test their theories about how to treat Niemann-Pick. Every dollar DOES count!
Learn more about fund raising.
If you are thinking about applying for grants from other organizations, review our Finding and Writing Grants document for helpful tips. This presentation received excellent reviews at our 2002 Family Conference. The document is in PDF format and requires Adobe Reader to view.
* Information about fund raising is provided for informational purposes only and is not a solicitation for funds. Links to Helping.Org are provided solely as a convenience for those who wish to use a credit card.

Many people would like to contribute to charitable organizations like NNPDF, but are worried that their donation would be used to pay for luxury office space, high salaries, and professional fund raisers or that the donation will be wasted while nothing gets done.

Here are the facts about the National Niemann-Pick Disease Foundation.

The Foundation was established by families of Niemann-Pick children to expand research into this rare disease and provide support for other families.
All Board members and officers are volunteers.
Fund raisers are organized and conducted by NNPDF members in their local communities. The Foundation doesn't hire professional fund raisers.
Over 85% of expenditures are program services, such as research grants, family support, and educational materials.
Members contribute their time in many areas to keep administrative costs low.
The Foundation has a record of getting things done. Some of the accomplishments achieved since NNPDF was founded in 1992 are:
- Raising over $2,400,000 for research, family support, education, and other activities,
- Funding the research that led to the discovery of the NPC1 gene,
- Identifying numerous gene mutations for use by researchers, clinicians, and genetic testing,
- Studying the neurological effects of NPC,
- Co-sponsor of the 1st International Symposium on NPC,
- Promoting awareness by publishing educational materials,
- Holding annual family conferences,
- Publishing a newsletter three times a year,
- Providing an electronic mailing list for members, and
- Sponsoring this website.

The website provides a summary of the Foundation's expenditures. Financial reports are available on request.

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