5th National Niemann-Pick Disease
Awareness Month
October 2006

October is the time to raise awareness about Niemann-Pick Disease. We need to get the word out about this rare disease - to doctors, to families, to government leaders, and to the general public.

Activities can be simple or complicated but take some time during October to reach out and tell our story! Below are some tools available from NNPDF to help you.
  • The PERSEVERE bracelet (see photo -->).
    A periwinkle colored bracelet with the word "persevere" and the website address embossed on it. The card enclosed with the bracelet says "We, the families of the children affected by Niemann-Pick Disease thank you for joining us as we persevere in our quest to find a cure."
    Order the Persevere Bracelet     Order Persevere Clothing

  • The James Brown public service announcement (PSA). A 30 second and 60 second version are on BetaCam SP tapes used by TV stations. Contact the NNPDF Office to request a tape. (Web versions are low resolution. The tapes are very high resolution.)

  • Awareness Ad. Created pro bono by the Charleston Orwig advertising agency, this is a powerful statement of why Niemann-Pick research is important to everyone. The ad can printed for use as awareness flyers.
    Awareness Ad (pdf)     Why is NP research important to everyone?.

  • The Guide to Getting Media Coverage provides advice and examples to help you with newspaper and television coverage. Media Guide (pdf)

  • Awareness Items are available to use at your event.
  • Sample Request for a Proclamation. (word)
  • Sample Friends and Family Letter.
 
NPD Awareness Month
 
Past Awareness Month Activities

Governor's Proclamation.
Friends and family letter
Persevere bracelet campaign
Casino Night
Scare Cuz We Care Halloween fund raiser
Spiritual Convergence
Family luncheon
Proclamations in Toronto and Vaughn, Ontario.
Yankee Candle fund raiser.
NP Day at the Amusement Park
Classic car show, a magician, local radio station broadcast, a dunking booth, and a jungle gym at Sonic Burger.
Distribution of bumper stickers and brochures
New York City – Queens Museum of Art
Junior Collector's Day for Niemann-Pick Kids, Queens Museum of Art.
Spaghetti dinner fund raiser
Walk for a Cure
School poster campaign
Golf Tournament
Chamber of Commerce mailing.