NNPDF Board of Directors
NNPDF Board of Directors, Committee Chairs, and Staff (from left): front row - Nadine Hill, Karen Quandt, Barb Vorpahl, Susan Green; second row - Lauren Marocco, Holly Roberts, Rhonda Brown-Kehoe, Sandra Cowie, Nicole Yanjanin, Margaret Majors; back row - Lisa Chavez, Ryan Kelly, Carl Wayne Moore, Kathy Lane, Darrile Papier. Not pictured: Tammy Vaughan, Alexandra Conniff, Leslie Hughes, Doreen Wendlandt.
NNPDF 2012 Board of Directors
The NNPDF Board of Directors serve in a volunteer capacity, without remuneration for their work. Most NNPDF Board Members have loved ones who are affected by Niemann-Pick Disease, whether children, grandchildren, cousins, etc. Thus, they are highly motivated to see effective treatments and a cure become a reality as soon as possible, and they are dedicated to maximizing the use of the foundation's resources for the benefit of all affected by this devastating disease.
Thank You to our dedicated Board Members, for all you do to advance the Quest for a Cure!
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Karen Quandt, RN, MSN Board Chair Mother of Ty, NPC Edgewood, WA karenrq@hotmail.com |
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Ty Quandt, NPC
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Barb Vorpahl Vice Chair Mother of Stacey, NPC Fort Atkinson, WI bvorpahl@charter.net |
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Stacey Vorpahl, NPC 1/3/85 - 10/9/04 |
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Tammy Vaughan Secretary Mother of Alex and Laura, NPC Canadian NNPDF Rep Ontario, Canada tammyv@butterball.ca |
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Alex Vaughan, NPC
Laura Vaughan, NPC |
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Leslie Hughes |
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Riley Corbitt, |
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Lisa Chavez |
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Breann Chavez, NPC 2/10/03 - 6/8/06 |
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Sandra Cowie Director-at-Large Adult with NPB Toronto, Ontario, Canada slcowie@rogers.com |
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Ryan Kelly Director-at-Large Cousin of Erin Roberts, NPC Hanson, MA rkelly@alum.bryant.edu |
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Erin Roberts, NPC 4/5/80 - 12/1/04 |
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Kathy Lane Director-at-Large Grandmother of Collin and Cohen Parody, both NPB Dexter, NY collincohen10@yahoo.com |
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Collin and Cohen Parody, both NPB |
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Lauren Marocco, Psy.D. Director-at-Large Sister of Scott Marocco, NPC Baltimore, MD lauren.marocco@gmail.com |
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Scott Marocco, NPC 8/28/86 - 6/6/00 |
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Becky McGuire Director-at-Large Cousin of Kelly Thompson (NPC) Torrington, CT brad.becky.mcguire@gmail.com |
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Kelly Thompson, NPC |
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Darrile Papier Director-at-Large Mother of Dillon, NPC Frederick, MD papierfamily@gmail.com |
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Dillon
Papier, |
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Holly Roberts Director-at-Large Mother of Erin, NPC Hanover, MA hrober97@aol.com |
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Erin Roberts, NPC 4/5/80 - 12/1/04 |
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Brenda Teller Director-at-Large Mother of "Little Roy," NPC Chula Vista, CA bariasteller@cox.net |
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"Little Roy" Teller, NPC 2/26/90 - 12/20/03 |
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Nicole Yanjanin, MSN, CPNP |
NNPDF Board Consultants (Pro Bono) |
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Cynthia MacLean, CPA Financial Advisor Senior Director, Finance Dept. Red Robin Gourmet Burgers Aurora, CO |
Stephen
Mendel, Attorney The Mendel Law
Firm, L.P. |
Dr. Daniel Ory, M.D. Scientific Advisory Board Chair Washington University School of Medicine St. Louis, MO dory@wustl.edu |
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Other
NNPDF Representatives and Staff |
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Nadine Hill Director of Family Support Services P.O. Box 49 401 Madison Ave, Suite B Fort Atkinson, WI 53538 Tele: 920-563-0930 Fax: 920-563-0931 |
John and Chris Taft NPD Type A Family Representatives Monroe, MI |
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NNPDF 2012 Committees of the Board
Executive Committee
Karen Quandt, Chair
Barb Vorpahl, Vice Chair
Tammy Vaughan, Secretary
Leslie Hughes, Treasurer
Lisa Chavez, Director-at-Large
Sandra Cowie, Director-at-Large
Ryan Kelly, Director-at-Large
Development Committee
Ryan Kelly, Co-Chair
Lisa Chavez, Co-Chair
Rhonda Brown-Kehoe
Leslie Hughes
Kathy Lane
Becky McGuire
Wayne Moore
Karen Quandt, NNPDF
Chair (Ex-Officio member)
Staff Rep - Nadine Hill, Director
of Family Services
Finance Committee
Leslie Hughes, Chair
Cynthia MacLean, Vice Chair
Ryan Kelly
Art Sullivan
Karen Quandt, NNPDF Chair (Ex-Officio
member)
Staff Rep - Nadine Hill, Director of Family Services
Nominations Committee
Barb Vorpahl, Chair
Rhonda Brown-Kehoe
Lisa Chavez
Kathy Lane
Holly Roberts
Tammy Vaughan
Karen Quandt, NNPDF Chair (Ex-Officio
member)
Staff Rep - Nadine Hill, Director
of Family Services
Research Committee
Karen Quandt, Co-Chair
Sandra Cowie, Co-Chair
Alexandra Conniff
Kathy Lane
Lauren Marocco
Darrile Papier
Tammy Vaughan
Barb Vorpahl
Nicole Yanjanin
Staff Rep - Nadine Hill, Director of Family Services
NNPDF Family Support Programs
2012 Family Conference Planning Team
Nadine
Hill, Chair
Sandra Cowie ~ Family Conference Host 2010 (Toronto)
Karen Quandt ~ Family
Conference Host 2009 (Seattle)
Tammy Vaughan ~ Family Conference Host 2010 (Toronto)
Barb Vorpahl ~ Family Conference Host 2007 (Milwaukee)
Brenda Teller ~ Childcare Activity Room Coordinator (CAR)
[Aug 2, 2011 mem; Jan 6, 2012 mem; Feb 14, 2012 mem]