October 2011 - National Niemann-Pick Disease Awareness Month

Please consider what you, together with the help of your family and friends, can do to help raise awareness and funding during this October's Niemann-Pick Disease Awareness Month!

Scroll down or click here to see what projects other families are hosting for Awareness Month, or visit our Upcoming Events page.

Please be sure to let us know what you're "cooking up" for Awareness Month!

October is the time to raise awareness about Niemann-Pick Disease! We need to get the word out about this rare disease to doctors, to families, to government leaders, and to the general public.

Activities can be simple or complex, but please make some time during October to reach out and tell your story! Below are some tools available from NNPDF to help you.

We invite and encourage each family to look within their family structure, friends and community support networks to create their own team and sponsor an awareness campaign and/or fundraising event during October 2011.

YOU are the key to the NNPDF's success!
It has been a team effort which has propelled the foundation forward the past eighteen years and it is a team effort that is the key to empowerment against this disease.

Won’t you please join us in our efforts to raise awareness of NPD and to illuminate the vital call for continued funding of urgently-needed research into Niemann-Pick Disease?

We are here to help you!

Below are some tools available from the NNPDF Central Office to help you. We ask that you notify the foundation office of your events so that we can post them onto the Web site. We want to be supportive of you as you prepare for your event, and sharing your event information will serve to inspire other families as well.

Family and Friends Letter in support of October as NPD Awareness Month:

• Sample Family & Friends Letter
• Sample Family & Friends Flyer
• Family & Friends Questionnaire/ Form

Linked above are examples of a Family and Friends letter and flyer that we will help you customize to your unique family situation.

Simply complete the family questionnaire, return it to the NNPDF office, and we will have the customized letter and flyers (approved by you) printed and shipped to you.

All you need to do is address your envelopes, add postage and mail them out!


NNPDF Resources for your campaigns:

• NNPDF Awareness Items
• Posters, Newsletters and Brochures
• Request for a Proclamation (sample)
• Press Release (sample)
• Press Release (2nd sample)
• 11-11-11 Challenge Info
• NNPDF Fundraising Packet -- a handy “how to” guide that will walk you through all aspects of hosting a fundraising event for the NNPDF (Contact the NNPDF Central Office ~ we will be happy to help you!)
• Awareness Ad -- Created by the Charleston Orwig advertising agency, this is a powerful statement of why Niemann-Pick Disease research is important to everyone. The ad can be printed for use as awareness flyers.
• Contact the NNPDF Central Office if you need additional resources

PERSEVERE AWARENESS
ITEMS/PRODUCTS

NPD PERSEVERE PIN
Help raise awareness of Niemann-Pick Disease with this colorful gold pin. It is an attractive addition to a lapel, jacket, hat, purse, backpack, etc.

The NNPDF Persevere pin is approximately 1 1/2 " wide by 1" high.

Persevere Pin Order Form

The PERSEVERE Wristband (worn above).

"We, the families of the children affected by Niemann-Pick Disease thank you for joining us as we persevere in our quest to find a cure."

Wristbands can be sold for $1.00 each as a simple fundraiser, easy for even children to sponsor. 
Youth and Adult wristband sizes are now available.
Persevere Wristbands
NNPDF Vinyl Banners
NPD Posters (4 designs)
Additional NPD Awareness Items

PERSEVERE CLOTHING
Quality garments created and supported by the Leon and Lorna Tyrrell family in honor of their daughter, Naomi (age 9, NPC)

• Governors' statewide proclamations
• Mayors' citywide proclamations
• Friends and Family letter campaigns
• Persevere wristband sales
• Casino night
• Family luncheon in celebration of a loved one with NPD
• Yankee Candle fundraiser
• NP day at the amusement park
• Classic car show

• Distribution of brochures
• Spaghetti dinner fundraiser
• Walk-a-thons, 5K and 10K run/walk
• School poster campaigns
• Golf tournaments
• Silent auctions & raffles
• Chamber of Commerce mailing
• Penny challenges at elementary schools
• Add NNPDF web site logo & link to your e-mail signature line. Click here for info

For more details on the events listed below, visit our Upcoming Events and Recent Events pages.
(Please let us know what your family is planning so we can post it here, as well!)

Alabama

California

Connecticut

McGuire Family - Wine and Cheese Night;11-11-11 Challenge - in Honor of Kelly Thompson (NPC) - Cousin of NNPDF Board Member Becky McGuire

Iowa

Maryland

New Mexico

New York

Purpura Family - 11-11-11 Challenge; pop can tabs collection - in Honor of Ashlyn Purpura (NPC)

Pennsylvania

Washington

Wisconsin